My last day with CERA ‘ carers’

It doesn’t matter that I say it every day- that he CANNOT give me boiling tea, as it’s so easy for me to tip it over myself and burn myself in bed.
5 mornings in a row I’ve had the same conversation.
He’s a nice bloke, and has no Malice, but seriously?
What the f*** is so complicated about my request for not hot tea.
He even goes away and brings it back, the steam still roaring from the mug, and says ‘ is that ok now?’ when it’s so overwhelmingly obvious that the liquid is still at near boiling point.

I have said probably 20 times to just stick his finger in and test it
– that I don’t care.
But he can’t do that, because ‘ that would be wrong ‘ so he risks giving me third degree burns instead.
Well that makes perfect sense, right?

The Chilling Truth.

I saw my two buddies, Tweedledum and Tweedledumber ( aka Rick and Quentin ) tonight.

As i have a UTI and am on antibiotics, and they aren’t, only 2 of us were  knocking back thé pints. It was a very funny night, as both are dry, but not as dry as I am, but they did their best to constantly take the piss, as only the Best of mates do ( well if you’re from Wales, or The North, anyway )

As they got more pissed,  they started talking about this blog. Quentin has never read it, and Rick says he hasn’t for a year, but both were convinced that I should stop writing it. Understandably, I think, I asked them nicely what qualified them to have a strong opinion on something that they never ( have ) read.

They said it does me no good, essentially, or words to that effect, and asked what was the point of it? I said, as I always say, it’s just my diary and it doesn’t have to have a point, as it was never intended to, and not even started by me. I just sort of inherited it, after I came out of a coma.

Q told me for the first time I’d heard it, what the 4 hours were like in France that I lay in the road, as he was apparently holding my head off the tarmac,  my back broken, lying on 14 broken ribs, and pleading to be moved. ‘Just move me, please’  over and over, along with ‘ when is the ambulance coming ?’ over and over again.

He told me about those hours of trying to get French people to NOT drag me off the road, to let the cars go by faster, and how I’d died in the helicopter, but was brought back, and how that happened again after the heli had landed in Toulon military hospital.

It was chilling stuff, though I listened impassively to it, I have to say, it being from another life almost ( though in fact the first hours of my new life – that of a paralysed person )

Rick asked why on Earth I didn’t know this story? I said that I’m glad I hadn’t known it a year or more ago, as it would have been too sad for me, but tonight I was immune to the horror of it, which represents my ‘ progress ‘ from morbid sadness to actually living again and not thinking about death a whole lot.

They seemed intent on pressing me for a reason for a blog though. I said that it’s really NOT my Raison d’être, and i perhaps spend a few minutes a day on it, sometimes more, but I never ‘plan’ any of the posts, I just write them as the thoughts occur to me. I said I have far, far too many more important things to think about than this blog, which then begged the question of why I bother.

I said that I reckon I include a fair bit about the unpublicised effects of disability, and also that you CAN come back from despair to happiness, and if that helps just one person, then it has actually been ‘ worthwhile ‘. I said I just talk about  stuff that happens to me, that’s all, and the appalling world of the Care industry, which you’d have no clue about unless you were in it. Likewise the transport network, and how it caters ( or not ) for me.

I suggested that they actually read it, rather than condemn it, and they might even learn something… but no, they said they would rather not.

As i dont write it FOR anyone then, I’m not bothered if they read it or if they don’t, but interestingly Rick asked if any of my real friends actually read it. I said that as far as I know, every one of my real friends ( other than them ) does read it, and regularly have a laugh at my little adventures, and possibly a little cry here and there.

Anyway, they seemed determined not to read it for some reason, and that’s fine with me.

As they’re both Wan***s  from the North of England, essentially, they will never know that I just wrote that.. will they ?

😂

From my Ex – Help in Portugal

( About Wendy ) She sounds and looks great Russ – Unlike your carers, if that is the right word. Go private, pay the carer direct. Tell them to register self employed and get two, month on month off. Pay them per day what you pay the agency per day and they will be over the moon. Also my friend, interview loads and pick the right people, infact t pretend you are interviewing for the Yukon 1000. Tell them the good things for them too. Life with Russ is busy but never boring.
Oh, so, also, advertise up North, you will get more bang for your buck. Be good my friend x

Russ, once I have my certificate for Portuguese language ( which is a good way off ) I will come over and do a month for free. I cannot understand why the carers do not want to be out and about. You taught me so much about my own Profession, true my friend.

Be out and about or iron fresh sheets for a man who can’t feel them? Well in my best Scouse it’s a no, or is it no brainer?
X

I will get on my Facebook and see if I can find you a carer and someone who wants to be out and about. I have many friends in the care world. Let’s just see if I can help.

Good Lord

I asked Isabelle what she did in her spare time.

Speaking ever so slowly, she replied ‘ I’ve been really bizzeeee… ‘

I said ‘ doing what?’

Well, I like to reeeaddd

What about ?

Nuffink in particular, jus research, stuff like that.

Oh really, I said, have you done any research on my condition ?

Not yetttt, I been really bizeeeee.

Later on – I asked what she was reading on her phone.

She struggled with the word, saying Para-leeeee sis.

I asked if that was the same as paralysis?

I fink so, yes.

So there’s progress ? Kinda? Not her fault though is it?

CERA – who sell themselves as experts in care, ought be shut down, i feel?

More.

Thé place i live in is blindingly obviously a ‘ new build ‘. They’re building the block next door as I type, with cranes and construction workers everywhere.

Isabelle just asked me ‘ have you lived here all your life ?’

Im 51.

I appreciate her try at conversation, but seriously ?

You just have to stifle what you actually think, pretty much most of the time tbh.

As I said, it’s not her fault, is it?

Part of her job description is to ‘ keep me company ‘.

I have more chance talking to the plants.

A comment.

Hi Russ,

It’s ironic that they call your staff “carers” when any “caring” appears to be sorely lacking.  Here in the US, they use different terminology.  Such as Home Health Aides, for instance, in New York.  The terminology differs from state to state.
I am curious if you have the option of placing your own private adverts and “robustly” interviewing your own staff?  Have you tried college students of various types?  One hopes you’d at least find a certain level of intelligence.  Perhaps those training in physical therapy, sports medicine, or massage therapy?  One hopes they’d at least know what a calf muscle is.
It must all be extremely frustrating for you at times.  You have my sympathy and also my admiration for how well you handle it and carry on in spite of it.  I’d probably be foaming at the mouth in frustration and anger at times.  Which eould probably only make things worse…
So glad to hear you have a new lady friend in your life.  And so sporty, too.

Dawker me old mate
I look at yr blog most days…
Is it possible you’re too demanding of your carers? Appreciate you’re paying but you’ve fallen out with so many that I think maybe you should look at yourself… Maybe work out what works for them as well as you so next time you get a half good ‘un you get a chance to train them up before you lose them?
I’m in the UK second half August – are u around? Not sure where and when(!) I am yet but keen to catch up and see yr gaff!
Cheers dude!
CX
P.S. Wendy sounds a good ‘un. No way I’d have cycled 35 miles! That’s what Uber’s for!
Charlie,

Yes that has occurred to me.

But if you were in it, you’d find it actually hard to believe.
They are often so moronic it defies belief. I don’t suffer fools gladly, let alone imbeciles, Charlie.
I make light of it, or I’d kill one of them I think ?
You have honestly never met anyone as thick as Isabelle, today.
She has to ‘ write a report about me ‘.
It takes her longer to do that than she has actually spent time doing anything for me today.
I get a new one from Poland tomorrow. She is Polish and has learnt English. That puts her in a different league to Isabelle, who is English but can barely speak English.
If you had her ‘looking after’ you I can GUARANTEE that it would drive you insane, matey.
Yes, I’m damned by being intelligent, in this game. All their other ‘ clients ‘ are old and ‘ senile’ or mentally disabled. That makes me ‘ challenging ‘.
I can hear their ‘ routine ‘ …
They look at me and slowly say ‘ hello…. how are you today…? Have you been out at all…. when I briefly mention just a tenth of what I’ve done that day, they are struck dumb, and clearly fazed.
I just asked Isabelle again about ‘paraplegia’.
She slowly said it…. obviously for the first time. She’d never heard the word before. That’s scary, mate.
How can they send me a ‘ carer’ who has absolutely no clue about my condition ?
Thé agency are clearly at fault for just taking on anyone at all, the uneducated and unemployable in any other walk of life.
Is it the carer’s fault that she’s so thick ? Not really – that’s genetic. Am I right to get frustrated ? Yes – that comes from conditioning. Im conditioned to expect people who work for me to be capable of doing the job, and im conditioned to have reasonable expectations, and  reserve the right to be dissatisfied with crap service.
Hope that answers your question, buddy.
Love,
Russ
Sent from my iPhone 9.6 prototype.

Not atypical.

Ive had a carer called Isabelle a few times this week. Blimey, she takes being thick to whole new levels.
All hair and handbag, she is the 27 year old i mentioned previously.

I tried to engage her in conversation, and asked if she was married or anything. She told me that she had been seeing a footballer for about 2 years. I tried not to stereotype her ( but actually I should have )
I asked how they’d met. She said ‘ on Insta’. It occurred to me that she would just ASSUME that I would be familiar with Insta… to the degree that if I wasn’t she’d have thought ‘ are you really fick or sumfing ?!’
You have to bear in mind the irony, when a few minutes later i asked her if she’d massage my calf muscle to stop my spasms, and she said ‘ what’s a carrrf mussel ?’

How can people like her, whose first language is English, be put in charge of looking after anyone at all with any kind of medical condition? What if I’d said ‘ I have a staphylococcal infestation ‘ or something ? For absolutely sure she would have looked completely blankly at me, and assumed I was delirious ( or sumfink )

I can joke about this, but seriously, someone that thick and someone with a medical problem, is a potentially lethal situation.

As The Kaiser Chiefs sang ‘ It’s cool to know nothing, it’s cool to know nothing… ‘

I have a UTI btw. I told her just now. She said nothing at all, so I asked if she’d heard me. She said ‘yes’ It was apparent to me that she either had no idea what it was, or had zero interest.

Carer? I think the clue should be in the Job title….?