Bladder Botox was quite an ordeal.
Christ they first manoeuvred my legs into stirrups and then he stuck this foot long metal rod with a camera on the end into my ‘ organ’ and did it all on a video screen
If I could feel it, it would have been horrendous, I’m sure.
It takes 2 weeks… to take effect. Perhaps then my bloody legs will be less stiff?
I’ve had 2 nights of decent sleep as well. That’s been a bloody novelty.

Saw a band on Saturday night- Leftfield- in Kentish Town. Never seen a venue more packed. Who’d have thought they were still that popular?
Dick Whittington in Richmond theatre was very good! Thanks to Esme for coming on both Saturday and Sunday.

And also saw A Christmas Carol at the Old Vic on Friday with a special young lady.

And fresh outta Botox surgery I’m going to the theatre tonight to see The Book of Mormon. I saw it in 2014, while still in Stoke Mandeville hospital. I couldn’t even bring myself to smile back then, so I don’t remember any of it. Tonight should be better!

And lovely to see some very close friends on Monday at mine, as well as half the Toulon 12 cyclists last Thursday.
It’s been pretty busy then! When I was living on 3 hours sleep, that wasn’t helping much.
Now ( perhaps) that isn’t going to be the case going forward. I don’t know!

Skin lesions not cancerous either.
I live to fight another day then.
🤷🏴󠁧󠁢󠁷󠁬󠁳󠁿

Despite doing quite a lot.. I just can’t sleep.

A gig on Saturday.. Leftfield
Christmas Theatre at the Old Vic on Friday
Football and then Dick Whittington yesterday.

Still I get 3 hours, sometimes 4 of sleep.
I’m exercising as well.

Bloody hell im tired.
My legs, although bloody stiff and unbending aren’t spasming anywhere near as much, but I wake and cannot sleep again.
It’s bizarre.

My legs are even more rigid than before.
Baclofen, the antispasmodic drug, possibly makes me worse. Hard to fathom but I’ll come off it and see.
Hospital today for Botox injections inside my bladder.
I spend All of my time trying to suppress and deal with my leg rigidity and my medical appointments, yet thus far there hasn’t been improvements of real significance.
That makes me very unusual in the paralysis world.

Jesus.

At least some distraction this week. Tried to stack my diary with stuff to bloody do.

Well a more consistent sleep pattern now. Four hours, sometimes more. That’s enough to survive on.

At least it enables me to function a bit.

Now as though things aren’t already a little problematic… I’ve now got 2 very dodgy looking moles appeared that need urgent inspection… so waiting for that.
Also I now have a strange persistent cough and a weird taste when I do. Hmmm , what can I say.

Aside from that life is a little better. I still don’t understand football but I’m still going to Brentford today to watch them vs the ( kinda ) illustrious Luton. Theoretically we ought win.
My social life is limited, dictated by spasms and whatever is happening in my ‘ insides’. Thats a euphemism for the unsavoury things.

Friends have been very helpful recently, I have to say, and I’m very glad I have them.
Gina has been a superstar of course, having spent far more time with me than ever before, and big love to my mum and dad. They have been awesome tbh.

And a special mention to my friend Ali.
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