But seriously…. despite Boris K in da house, I endure and life isn’t all bad.

Loved seeing Nev, Churchy Day, Roy thé Boy, Fragrant Jo, Sonia today, Chris H, Pia of course, Moby ( aka Mark and Toby , DIY experts, both ) Cressida, Wendy briefly, Pat and Amber ( no, not my daughter )  – all people that make a difference to a life of a person ( me ).

Brilliant gig tonight in Kentish Town !  George Clinton ( 76?! ) and his Funk crew of total honeylicious backing singers, cool male dancers, big  black home boys, and great band.

Russ Rating 10/10 – I challenge anyone at all not to have a good time in this room, tonight.

Yet again not a single white face on the stage and not a single Brother in  the 2000 strong crowd?!

Massive thanks to my new gig buddy Chris H for the invite – and i dont care how Gay we look either.

There’s practical, and there’s impractical. Between these two there are degrees of practical and impractical. Having grown up with practically minded people around me, i wouldn’t in my youth have classed myself as practical. You then learn all sorts of things and can become skilled at things, even though you aren’t necessarily a natural. I’d say that that describes me – I’ve basically learnt a fair few things and I am definitely lateral thinking about practical solutions, applying my learnings and  skills, such that they are.

When i meet a bloke that seems completely clueless in every way, practically, and he’s over 40,  I just wonder how he’s got to that age at all?

Its apparent to me that as well as never cleaning a floor, Boris has never hung washing on a washing line, used a drill, or put a dishwasher on either. The man has SIX children! It’s now obvious why his wife has willingly let him get a job hundreds of miles away from Hungary. She OBVIOUSLY does every single thing in their household, and he gets in the way – so she’s better off when he is not there. If he’d just thrown the washing at the line and hoped for the best, I think it would have been better than how he actually did it, and that was with me trying to explain how to do it.

My last Male carer in Portugal wasn’t exactly ‘spanner literate’ but seriously… compared to Boris he was nearly Isembard Kingdom Brunel…

I really should video this stuff, but I don’t think you’d actually believe it. You’d think it was all staged, for comedy effect.

These days I seem to get a spell every single day where my spasms just will not stop. For 3-4 hours they are pretty non stop.  Then, at some point, they peter out, for no particular reason.  Perhaps my muscles just get tired of continuously contracting ?

My thighs are definitely getting more and more muscular because of it, but blimey my legs are heavy as a consequence.

Two hours ago I left Boris to take about 12 things from the car into the flat, all stuff from the storage unit.

I know that when I get back itll be in a large and haphazard pile in the middle of the lounge.

Who cleans a bathroom floor barefoot with filthy feet ? With every step you make the wet floor more dirty than it was to start with. When you try to leave the bathroom you then leave dirty footprints wherever you go next…
I watch Boris do things in almost morbid fascination, just wondering what chaos he is about to create.
The bathroom floor situation was prompted by me wondering what he was doing in my bathroom for 20 Minutes with the door shut.
Hé said ‘ I’m sure you’ll find something that isn’t right ‘ I unrealistically hoped that actually there would be zero to have issue with, as he’d been in there for so long.
To go in and find that actually nothing at all was clean or disinfected in any way at all was a mystifying thing. It became more explainable once I’d seen that he had used 1 piece of tissue paper and some mirror cleaner to ‘ clean a bathroom’

I said to get a proper cleaning cloth, and that might help. He went off for several minutes and came back with a tea towel from the kitchen. I asked if he planned to clean the toilet with the tea towel. What Boris does when he knows he’s been ‘ foolish ‘ ( retarded ) is to completely ignore my response and just look blank/ slightly irritated. I pointed out the VERY LARGE pack of ‘ hard surface hospital disinfectant wipes ‘ just above the loo, and ventured that he might use one of those? I said to be sure to do the basin first and thé loo second if using the same large wipe, as it would transfer lots of germs.
I watched him clean around the toilet rim and then go to wipe the basin with the same wipe. Bewildered, i said ‘ stop please, I just explained about the hygiene..’
More silence from Boris.

It was then that he started on the floor with his bare black feet, and despite my asking him not to, walked over the new pale carpet leaving black footprints.

He’s either just completely deaf and exceptionally thick or he is doing everything deliberately? I fear that it’s the first option, as thé second would take some conscious thinking.

Mate , I’m in M&S in Bath
They have disabled toilets
You have to go down 10 stairs !
What the fuck ?

Last night I went to a gig with a man, for the first time. I think I’ve always thought it was a bit gay to do that…  but now I’ve embraced my non sexist attitude I have also realised how incredible straightforward male company is in these situations.  A few drinks first, a laugh in the sun, and then RUN DMC in Hammersmith.

Packed! Brilliant show, real crowd whipper up’ers and loads of great tunes.

Since when was Rap music so white middle class?  Not a single black face in the crowd ? What’s that all about then?

Thanks to Chris for coming. We are definitely going to do it again, soon.

Sorry Russ, phone problems, all sorted now. So yes slow reply. Hope you are good (as well as can be expected). No it is not a live in job. It’s 5 days a week, 7 hours a day, 10 am til 5 pm. It is fantastic, local, I go on the bike ( of which I thank you for). It’s about 2 miles away, quicker on the bike than a car!! Just been reading the blog. Fuck me! I know I am a bit of a dope ( or alot ha) but how does Boris forget to charge the triride twice. Ok once maybe? But twice, I don’t think so. He is taking the piss. Normally carers stick together, but no chance could anyone forget to charge the triride twice. Get shot of him Russ, he does not have your interest anywhere near his heart or mind. Sad for you about your daughter’s too, but please don’t give up on them mate. Trust me mate just keep plugging away. In the end it will work out because you are a good guy. Love you lots bro and would love to give you a big hug right now. Stay strong, as you always do x

Having been ‘ engaged in litigation ‘ for some years now, with one thing and another, I decided yesterday to disengage.

I gave up on the fight for what my ex wife owes me, on the basis that she is absolutely not going to pay me anything anyway ( yes, she’s a lawyer herself and she knows the way the system works ) , and I gave up ‘ fighting for ‘ access to my children, on the basis that if they don’t want to see me they won’t anyway. They know my email address so that ought be enough. They have somewhere ‘ nice’ to live, have their high maintenance mum to look up to, and have Pringle as a new Dad, so it’s not so bad for them overall – plenty of kids are far, far worse off. I have pictures of them on my walls so I remember what they look like…

I now only have my medical negligence legal battle ahead, and that’s going to last for years, so not that exciting or pressing.

Yesterday I unpacked all sorts of stuff, including lots of wedding photos. What do you do with that stuff when you’ve got divorced? I’ve offered it to the Ex but had no reply, so I’ll give it a few days then throw it all out if I don’t hear anything more. I don’t have room for junk in my place.

I feel a great sense of peace where there wasn’t peace before, so that’s good.

Progress, for sure.

X

Boris ‘ forgot ‘ to charge my Triride battery, for me to use yesterday. That meant that all day long i was having to stop and ask people if théy could help me to charge my chair. It was a bit touch and go a few times, but I managed to quell the avoidable distress quite well.

Boris knew how having no charge would impact me.

Today, after meeting with the agency worker in the morning, to discuss Boris ‘s faults, i asked him to help my attach the Triride so I could go out.

I honestly could not believe it when I turned it on to find that, guess what… again, after all the hassle of yesterday, he had forgotten AGAIN to plug it in to the wall.

Im not lying when I say that sometimes I am totally bewildered by the completely indifferent attitude of my (paid) help.

I am now plugged into a wall in a shop, having not enough charge to get home.

He doesn’t even apologise… he just shrugs.

Yes, I am doing all I can to get someone else. And to keep smiling.

Thanks to Brian and his mum for all their help with that yesterday, and for the benefit of their wisdom.