Category Archives: Events

🤷

It is actually quite funny seeing how people are reacting to not being to do this and that during the pandemic.

Eight years ago, overnight 99 % of the things I used to do became impossible to me, for ever.

People did (very helpfully ?) tell me that I just had to focus on the things I COULD do and not the things I couldn’t.

Well now when I watch how some of those same people are doing, when deprived of the odd little thing, it’s interesting to see them manage it so badly!

Lots of people are abjectly failing, with all sorts of mental health crises and breakdowns.

Lordy, you really haven’t experienced one percent of my world…

🤦‍♂️

Grim

I met up with my refugee buddy today.
Because they don’t have any money, any possessions they have are because they’ve been given them.
Well like most people, I have way too many clothes for one person, so a big paring down ( with the help/ drive of Lizzy ) was with a view to passing stuff on to my friend. He ‘ lives ‘ in a hotel near Heathrow airport, along with a LOT of other asylum seekers/ refugees, and the arrangement is that anything he doesn’t want that I give him, he can distribute to other people that might.
I can only carry one bag at a time on my lap in my chair, but he got the first bag today.

He was telling me what it’s like in the country he fled from. If he goes back, he’s sure he’ll be killed. His family ( wife and kids ) have a police car permanently parked outside their house, and every day they are questioned as to his whereabouts. Their phone is tapped, as is any WhatsApp conversation they get. He said that the regime has an arrangement with the Chinese whereby they have the tech to tap into WhatsApp conversations… so they have to use a different internet chat, which of course they do.
Most citizens earn minimum wage, which is equivalent to £120 per month, and food shortages are getting steadily worse. People are arrested for any reason at all, and don’t have the right to question why. Their families and friends aren’t allowed to question why either. No information is given as to where the arrested person is, or whether they are even alive.

When I said ( some ) that people here in Britain are bitterly complaining about ‘ infringements to their liberties ‘ during the current pandemic, he couldn’t stop laughing.
Although he has very little, he is evidently VERY pleased that he’s here, and not in the country of his birth.

The amazing thing is though, is that his home country is a place that most Brits wouldn’t think twice about going to on holiday, and you have probably been there. Tourists get a very different experience, and their money is very welcome, but for the populace, who aren’t allowed to talk to foreign press, things are dire.

Thanks to Russ n Yola!

I went to a party tonight. It’s definitely the case that once you are in a wheelchair you get invited to stuff less and often ( it’s the ‘ well what if he/ she can’t get into the loo ?! ‘ etc for a start ..) but my good friend Russ sees beyond that and invites me every year.
Thanks so much to my date, Kerry M, for her help/ company/ dance floor accompaniment … since I an currently officially single … and to Russ and Yolanda for the invite.
It was a real laugh tbh, despite the presence of an ‘ old life of mine ‘ couple that were both very rude/ ignorant to me. OK so now that I’m in a wheelchair you can forget all the hospitality that I gave you pre injury for 30 years and treat me like scum?
Once upon a time, a long time ago, I was somewhat infamous for sneaking my urine into people’s pints … and once you know how.. well you don’t find it particularly difficult, because people definitely don’t expect it!

So it was very satisfying to see these 2 people sup on my wee ( as sterile as it it almost certainly, is to be fair )

So Cheers Both ! Great night all round!

A Good Day

A bit ago I signed up to an organisation that seeks out and ‘ employs ‘ volunteers as Befrienders. … I’m going to be deliberately vague about details because the people it needs volunteers for are to befriend/ help asylum seeking refugees to this country.

People who seek asylum here are only successful if repatriation to their home country would mean persecution for them… as far as I understand it, anyway.

I was approved as a Befriender after an online interview, and various form filling in, followed by a chaperoned video call with the proposed refugee. I actually used my status as a Spazzer to jump the queue – well in this day and age all organisations need to prove themselves ‘ inclusive’ before anything else… ( bonkers I know, but true ). I therefore went straight to the top of the list for my own refugee.. and one was offered straight away… I know this sounds contrary but there are actually too many volunteer Befrienders and not enough refugees ( that the organisation deems suitable ). Of course it’s a fact that there are a lot of asylum seekers that are here very much NOT because they are persecuted at home, but rather that they are just trying to take advantage of the UK’s ‘ humanitarian treatment ‘ when it comes to immigrants… so the organisation weeds out those that it thinks are unlikely to be here for the right reasons.

Refugees here are put up in accommodation, and fed… until they go through the process… after which they are either approved or they are sent back to their countries. Whilst in this limbo situation they aren’t allowed to work ( in a paid sense ). I met my Friend today, face to face for the first time. The Org suggests that my role is to spend 2/3 hours a fortnight with the Ref, during which time I do my bit to make him/ her feel less alienated in British society. They suggest a coffee and perhaps some sort of ( free ) activity.
Well anyway… I have enough coffees.. and if I am going to try to make someone’s week then I can do better than that.
The ONLY advantage to being disabled is that generally when I pay to go into some venue, I am entitled to have an able bodied person come with me for free ( as my help )… so that means I actually don’t have to pay anything to get my Ref into venues.
So today, I asked my fella to meet me at London Bridge tube station at 4.30, which he did, we went for a coffee.. and then as a pretty cool first outing we went to the top of The Shard ( it’s called The View )

I have to say that my Friend didn’t stop smiling and giggling for 3 hours. When you are given EIGHT POUNDS A WEEK for all your ‘ entertainment’ then you obviously can’t afford to do very much… so today’s experience was way out the league of what he would be able to do himself. We talked and smiled throughout. He was a charming and friendly man, who in his own country was a Professor… and who was then jailed for speaking out against the dictator that had seized control of his country. After a year and a half in prison, he was temporarily let out to be admitted to hospital, and then managed to escape when his electronic tag was removed for him to have surgery.
Now here for the last 6 months, he works as a volunteer in charity shops, and awaits a decision by the UK authorities on his future. As a professor he was actually allowed to enter the UK officially, so he will almost definitely be granted Right to Stay, after which his wife and 3 sons can possibly join him here.
I can’t post pictures or details because he’s a wanted man .. and if he goes back he’ll be immediately jailed.

It gives me an enormous sense of well-being to do this to be honest. Perhaps it’s even better for me than it is for him?! Who knows.., but what I can say is that I do sense that it’s the start of a Beautiful Friendship.

Unfair.

I had some very, very depressing news this week.
Someone that I have come to know and love and admire very much has a recurrence of cancer – not as before ( throat ) but this time in the lung, mouth and brain.
The lung tumour is inoperable, the others I don’t know…

This person is one of life’s real examples, and we have formed a bond that I fear will not exist much longer, not I’m this life anyway.

Heartbreaking.

Football fans

I’ve just been to see Brentford vs Everton

It’s bloody freezing in West London. I’ve never done this before, but today I had a hot water bottle inside my jacket… and I definitely wasn’t hot! That says it all.

Brentford won – good on em! – which was a relief, after a bad run … but I’m still surprised by how unpleasant football fans are to each other.
As I wheeled out of the stadium there were 3 guys having a an exchange of words.

I heard the Brentford fan say ‘ F*** off, you rat eating Scouser ‘

Well that’s nice. isn’t it ? The fella from Liverpool was a bit thin, but I doubt he actually has to eat rats – after all he could afford to get to London to watch his team… but maybe he went without Pot Noodles for a while, and did eat rats, so he could afford the MegaBus from Liverpool? It’s possible!

Just amazing.

And I have to thank the quite amazing Lizzy for arranging and then taking me to Rome for 5 days.
It was without doubt the best thing I’ve done since my injury.
It proved that there is … ( despite me often questioning it ) a life after paralysis.

❤️

Bands are back.

I went to a gig last night. It was Kasabian in Brixton. They were fantastic! I’ve seen them a few times before, but last night they were so much better then previously.
They have changed their lead singer, after the original one was arrested and charged for assaulting his girlfriend.
The band fired him.
His girlfriend married him… One of their big hits is ‘ I’m in Love with a Psycho’ … and Im wondering if they played that whist she walked down the aisle?

I’m sure he’s a changed man .. but the band is definitely better off. The new fella is seriously charismatic on stage and is a crowd pleaser… which is what you want when you see a band – you want to hear them play your favourite songs ( their hits ) and that’s exactly what they did.

5000 people and no masks. I’m away at the side on a platform… but there is bound to be Covid all over the place.

You get all sorts on the Spaz platform. Most are in wheelchairs, but not everyone. There was a girl arrived a couple of songs late that came with her very large breasted friend as her looker afterer.
A few songs later the band had a bit of a Lazer light show going on and there was a lot of flashing. The girl in the chair started to look a bit distressed and put her hand over her face… and I guessed she was probably epileptic. With that her friend suddenly grabbed her seated friend’s face and just stuck it between her ample breasts, to shield her from the lights… and released her once they’d stopped. She did then explain that her friend was indeed epileptic.

To be honest.. … I considered faking an epileptic fit myself after that ! 😅

As loads of gigs got postponed and rescheduled because of the pandemic… I’ve got another one tonight in North London. I’ve got a personal rule – I don’t cancel these commitments – it would be so easy to find an excuse to not do stuff ( because NOTHING is straightforward for me ) .. so I am going to go ( even though I don’t really want to ) but always always I’m glad I made the effort.