Bloody spasms are worse than ever. My legs are rigid and jerking more than ever.
I get little sleep as a consequence, as a rule.
I didnt go to Paul’s memorial today. To be spasming away at something so significant would make it so much less able to partake in. I just can’t function with jerking legs, whatever the occasion.
It’s grim.
Grim indeed. Have you managed to find the cause? Hope so x
I think it’s a multi factor thing. Intestines and bladder…. When you can’t feel anything it’s bloody hard to designate a cause 🤦‍♂️
So tiring in every way! Not much to suggest as I know you’re vigilant. Sending a hug 🤗
❤️appreciated ❤️
So sorry to hear you’re getting no respite from the spaasming- grim times indeed!