All posts by Russ

Wtf.

Events

I spent a good ten minutes talking to an estate agent today on the phone, détailing what I need in terms of accessibility / no steps/ level everything and the area around the dwelling to be lèvel.

I get an email from him shortly after with 3 semi detached Victorian houses enclosed – all standard houses with bedrooms upstairs.

Well surely I can manage a flight of stairs??? Right ?

So be it.

Events

I just received an email from the dermatology department of Hammersmith hospital, asking me to go in for an urgent appointment, after my recent biopsy. I can’t imagine that’s an altogether positive thing…

So, after surviving an horrific road crash, heart attacks and coma,  a near drowning after a boat capsize, and  a 100% certain to die suicide attempt, I’m now going to die of cancer… possibly.

You do have to see the funny side…. I certainly do!

Stranger and stranger.

Events

I dated a lady that I met online for a bit.  When she was nice, she was ever so nice, but when she wasn’t, she really wasn’t….

I finished the relationship, but you’ll never guess what happened next. …

She has refused to give me back various items of disability equipment that I had at her house! I mean what does a perfectly able bodied woman want with 2 wheelchair ramps, a slide board to enable my to get into bed, and a hold all full of colostomy bags ?

You couldn’t make my life up, honestly! I’ve had to report her to the police, ffs… Good Lord, whatever next?

And then Linda’s reply to them.

Events

 

Re: Poor driver behaviour – Route 237 CRM001:0005000002236

Dear Chico ,

Thank you so much for your response. We were on the bus between 12.55pm and 1.40pm. We actually missed a house viewing appointment due to the delay and had to wait around at White City until the agent could accommodate us again at 3pm. This led to delays for the entire day.

Perhaps something the bus drivers need to be made aware of is how long it takes wheelchair users to get around. It took 2 people 2 hours to get ready for that trip and house viewing. There is no such thing as just grabbing a coat as you walk out the door. To be met with rude and unhelpful bus drivers can make the difference to a paralysed person of even going out or not. Which sometimes seems to be the aim of the bus driver in question, that they would all prefer it if we just stayed home.

Your attention to my observations is most sincerely appreciated Chico, as able bodied people it our duty to do what we can for those less fortunate.

Kindest regards,
Linda

✅

Events

Temporary Carer is doing fine – day one is always critical and so far, so good. Linda has flown away for a few days, and entrusted me to a lovely Romainian. As I’ve been out a lot, it’s not been too demanding for her, other than 2 episodes of ridiculous spasming that was almost intolerable for me,  but that’ll change tomorrow I think, with Travel duties planned…

Oh, and she has to make me pancakes, obviously, as leaving me in charge of tossing would be just dangerous.

No clever comments, please…..

Something new? I bought mudguards for my wheelchair…

Sunday morning

Events

Something new?

I visited a Massive new development that is all Wheelchair friendly, yesterday, with perhaps a view to living there.

The day before I travelled ( I drove ) to Farnborough to get my Triride fixed. My control panel had broken so I had no idea of speed, mileage or battery charge left. I wasn’t really supposed to use it much in case I got stuck somewhere, but there was zero chance of me doing that, so I carried on the same and put up with the thing just cutting out all the time in the London traffic- drivers rarely give me a hard time, thankfully, so I get away with it, other than it being a bit reckless. But what am I supposed to do – just bloody stay in, or what? No chance.

I was actually out at 8.30 am to meet Roy and Dickon for breakfast on Friday- that was new, It meant having to go to bed early- a NEW thing in itself, but I did that last night too, so am awake at 6.33 today?? Good grief  I can’t make a habit of this, surely?

Wales lost yesterday – disappointment I must say I thought we’d win.

I went with my hot date to see The Phantom Thread the other day ( new ) – what a lot of tosh – it’ll therefore definitely win at the Oscars – they don’t give an award for The Biggest Load of Bollocks but it would definitely have won that category, so don’t bother going to watch it.

Today I’ll be shooting about in West London, meeting my new temporary Carer – a lovely girl- the challenge for the Carer is always ‘ can they keep up with me?’ which of course is not the standard Carer role. They’re used to looking after sedentary people, doing some cooking and cleaning, and making lots of tea – all way down on my list of things I need the person to do with me..