So tomorrow they want to hoof me out of here.
Nothing has been arranged, in terms of ‘ care’ for me, care that I didn’t need when I was admitted here on August 23rd, but do now.
The next 3 months will be extremely limited in many, many ways
The option of the NHS District nurse visiting to ensure that I don’t end up covered in my own excrement every day, seems to be a step too far for the NHS.
One helpful suggestion was that they get me wear an adult nappy every day, let me shit myself, and then clean me up as they put me to bed. That would result inevitably me crapping myself again shortly after – with consequential bed sores, and ultimately infection and death – that being a common outcome.
My GP, the District Nurses and Social Services all pass the buck to each other, and I’m getting nowhere, with an 18 hour deadline.
All those dark thoughts are flying around my head- the ones I used to have until 7 weeks ago, involving sharp blades and blood, and a quick fucking way out of this shit.
Ive been on the phone all day to so many people- my voice is hoarse and whispering now, and I’ve a sore throat
Having phoned Stoke Mandeville outpatients, their person said to refuse to leave, until such time that acceptable arrangements have been made.
The reason my fixation broke in the first place was that they INSISTED I transfer to my wheelchair 36 hours after filling my back with metal. At no point was I advised to be careful in any way about technique – as a consequence I bent and twisted my body at the same time repeatedly, in the presence of nursing staff and physios, who said ‘ if its going to break, then it will break ‘
I questioned this advice at the time and was told to get on with it Funny then that now, after the 4th operation they’re telling me not to move at all so that the bones and screws can knit together .
The inconsistencies are dramatic. How they’ll defend this in court, I don’t know. I’ll need a lifetime of expensive private care, directly due to the mismanagement here.
I’m not going to just take the hit, that’s for sure.
I am disgusted to read of the treatment you have received Russ. I have been following your blog almost daily and can’t describe the feelings I’ve had. Your surgeon appears to have not known what he was actually doing and as a consequence you’ve had to endure further surgery.
They cannot discharge you without an adequate care plan in place. Surely, lack of bowel care is an infringement of your human rights. Please don’t give up again Russ. I know that bloody black dog is near but shoo it away. Build on your anger and sue the ass off the surgeon, physios and discharge people. No one deserves this. Do you know your MP? How about contacting your local paper and try and get them there at your discharge time. It’s disgraceful and I really hope you take them to the cleaners. Take care.xx
I’m very fired up…. like a wheelchair Ninja?
Nor should you, such an appalling lack of duty of care , concidering how many conversations about what kind of package they could get for you. It’s totally unacceptable, and they could & should be doing thier professional best to find not just an acceptable solution, but a care solution that actually will work for you. I am so sorry that these seven weeks has brought you back to literally breaking bad. Your should win your lawsuit, I can’t imagine how they can defend the current outcome of four ops that failed to provide any dose tingle improvement in your physical options.
The only improvement has been your outlook, & you did that yourself. Thankfully, you have also regained your powers of logic & practicality which you’ll need.
* any single improvement