Category Archives: Events

So far

MAR
10
So far.
Well, my friends continue to move me to tears.
Yesterday Chrissie got here at 8.30, ‘supervised’ my visit to the loo ( ensuring I didn’t end up on the floor, and so much more ), then hilariously chatted to me for the hour I sat there, doing my thing, washing and shaving etc, then getting dressed.
She helped get my chair onto the arm bike for 20 mins of pain, then sat with me in the London sun (!) for 45 mins.
After that Larry turned up to take me for lunch pre rugby, driving me down to Sam’s in Chiswick ( where I had the pleasure of chatting to an old mate, Paul too )
Then he took me to James and Bev Cracknell’s place to watch the game with Phil, Tel, Dan, Rick, Cal, Roger, Joyce, and the kids too ( with varying degrees of interest in the actual thrashing of Wales )
More food, more wine, more laughs ( at Wales’ ineptitude ), then Pia took myself, Lily and Amber home, staying for an hour or so too and tucking me up in bed.

So, you could scarcely say I was Home Alone then.

Dani, in the unlikely event that you feel bad about going away skiing to a luxury spa hotel on the slopes…. Don’t.
36 hours in and all is good in the world.

Russ

MAR
10
So far.
Well, my friends continue to move me to tears.
Yesterday Chrissie got here at 8.30, ‘supervised’ my visit to the loo ( ensuring I didn’t end up on the floor, and so much more ), then hilariously chatted to me for the hour I sat there, doing my thing, washing and shaving etc, then getting dressed.
She helped get my chair onto the arm bike for 20 mins of pain, then sat with me in the London sun (!) for 45 mins.
After that Larry turned up to take me for lunch pre rugby, driving me down to Sam’s in Chiswick ( where I had the pleasure of chatting to an old mate, Paul too )
Then he took me to James and Bev Cracknell’s place to watch the game with Phil, Tel, Dan, Rick, Cal, Roger, Joyce, and the kids too ( with varying degrees of interest in the actual thrashing of Wales )
More food, more wine, more laughs ( at Wales’ ineptitude ), then Pia took myself, Lily and Amber home, staying for an hour or so too and tucking me up in bed.

So, you could scarcely say I was Home Alone then.

Dani, in the unlikely event that you feel bad about going away skiing to a luxury spa hotel on the slopes…. Don’t.
36 hours in and all is good in the world.

Russ

Without Dani.

Without Dani.

My long suffering wife has gone away skiing for 5 days on a girls trip.
She returns perhaps just in time to see me leave home off a few days of sun on Wednesday.

I’m pleased she’s getting a break from me, as it’s not easy for her.

So, the lovely Pia has organised a ‘rota’ of girls to ensure I don’t
1. Die
2. Starve
3. Smell
4. Sink into despair.

To that end I’m being fed, washed (delivered to a shower), helped get into my bloody small toilet, and back out again, helped with dressing , taken out, talked to, and generally being shown a lot of affection.

Thanks to Pia, Debs, Chrissie for their forthcoming help and to Saskia,Sarah ( showering) and to Cherie and Cressida in advance too for next week.
Cheers Mac, Larry, Cliff, laura, Bev, James, Rick,Terry , Dan, Chaffs, Tim, Sel, Adam.. God the list is endless.

And may Wales beat England today too.

X

Reunion

Reunion.

In Octobed there was a Cardiff Uni reunion, in a bar in London
I’d aimed to turn up, if you like as a surprise ( good or bad ) to see a whole lot of my mates from back then.
Uni was the funniest time ever. I can’t even contemplate writing about the stuff we got up to on this public blog.

As it was I never made it in October, it just wasn’t logistically possible. My friends though decided that they’d hold another one – for me- after I’d got out of jail, here in Chiswick.

Arranged by Owain and Dani, about 20 of us met up last night.
I hadn’t seen some of them since 1987.
Obviously in general the girls looked better than the fellas. Whether that was Botox, moisturiser, or self respect isn’t clear. Maybe they’ve just had it easier than the lads?
Am I allowed to say that?

Anyway, it was a really good laugh, and no one had suffered an adverse personality change.
Apparently 2 of them even ‘moonied’ a passing train afterwards…. It wasn’t me by the way – not possible physically.

It was bloody fantastic to see you all.

Let’s have another one soon.

Please
X

According to Kwow, there are now two trials relating to the transplantation of stem cells into the human body. Early research has shown that they have an impact on damaged neurons, but research remains in its infancy. Promising results have also been found in rats.

Lack of funding
There are six clinical trials of drugs which have passed stage one research, but lack funding to go to the second stage. Some of them do not constitute a cure, but target certain symptoms of spinal cord injuries and help to restore certain functions.
“More basic research needs to be supported in order to make us understand exactly what happens in spinal cord injuries,” says Kwow. “The approach towards spinal cord injury has to be two-fold. There is no immediate quick fix. We have to look at the basic science. What happens physiologically?”
Kwow says the failure of the medical profession to find a cure that will help spinal cord victims to walk again is down to the complexity of the problems involved. After a catastrophic injury to the spinal cord, the body tries to shut down the affected area.
“The body does not favour regeneration of the neurons. We can stabilise patients now. We need to come back to evolution and make the environment non-inhibitory to neuron growth.
WWe need to fight against evolution to make it more penetrable. The connections to the peripheral nervous system are also important. It is a very complicated situation. If you just have medical expertise in one area, it is not going to be enough.”
Kwok believes there is a lot of money for neurological research but most of it was going on other conditions such as Alzheimer’s disease or Parkinson’s disease. As a result, spinal cord injuries often lose out.
Red Bull’s Wings for Life Foundation funds 82 different projects into spinal cord injury. Kwok says it is impossible to promise a breakthrough to those victims of spinal cord injury, but there is hope that those young people who are currently confined to wheelchairs will one day walk again.
“We are proceeding by small steps. There are lots of small projects that are giving us insights into where we should go for the next projects. I couldn’t say if they will be able to walk in 10 years, but everything we are doing is important.”

Yesterday

Yesterday.

Yesterday I saw two members of my work team for ‘last goodbyes’.
Ina and Prabh have both decided to move on, along with quite a few others, since my absence.
It would seem that without me there it’s just not the same.
Those that have left have all written to me and articulately expressed their sadness at going, and sincerely thanked me for the positive influence I’ve had on them in the most formative parts of their careers – the early years.
If I’m able to go back, it’ll be to a quite different work team to the one I said ‘ see you next week ‘ to in mid June 2013.
To be honest I’m very very sad that it’s proven so difficult to keep them at work.
Loyalty to me seems to have been the overriding factor then.
I want to say thank you to Ina, Prabh, Jas, Mitul, Cath , Jayna and Ali for all their hard work and dedication over these last 5 years. I’m going to miss all of you, particularly if I make it back ( which I can now see is not going to be straightforward, having tried ( and failed ) last week to use my equipment in my consulting room.
It really is far from a case of ‘yes, the wheelchair fits under there, that’ll be ok’

Adam continues to punish me in the gym. Those parts of me that work are getting stronger at a crazy rate. The downside is that the bits that don’t still don’t. I cannot for instance sit on the edge of a bed without holding on tight.

Depressing, like so much every day, now.

On the upside my friends continue to make a fuss of me – Lisa last night took me out, Vanessa and Andy today, to name but a few.
I’m still in that mode where I seem to be watching the world go by, rather than being a part of it.
When I was being pushed along the sand of the beach on the weekend, I couldn’t reconcile the injustice of it all.
I should be the strong man pushing the person in the wheelchair, not the person in the bloody wheelchair.

I can’t see myself ever getting over that.