In this journey, over the last 3 and a half years, I’ve had the most amazing support at different times from so many different people.
What’s been a constant is the ‘non staying power’ of most. I have no negative feelings towards anyone at all, and thank everyone that’s ever said anything positive to me.
There’s one person that has stood way higher than all others though, and that’s my friend Pia.
I’d like to thank her for all her support and love throughout the very bad times and the relatively few good times!
Pia, you are finally off the hook, as I’m now able to be positive, even without you, a situation that I really never thought that I’d get to.
Pia has been my Mother Theresa figure for 3 years. She’ll soon find another person in need, I have no doubt.
Other than that I’ve spent the last 24 hours either actually shitting myself, or expecting to.
It would seem that the District Nurse team, for all their smiles and genuine goodwill, have little actual expertise in things bowel related, and prefer as brief an encounter as possible. As usual, I’m saying it like it is. They come and they go ( asap) but it’s myself that ends up with mud on my face ( that’s a euphemism )
I have made my exasperation known to them.