I just want to have a day which I could now described as ‘good’, the definition being where nothing has distressed me.
Today began with legs and trunk that spasmed for 5 hours. I did some work stuff on line through a fair bit of that, though it’s very, very hard to concentrate.
The spasms lessened for about 2 hours, which I had to spend ‘ in the bathroom ‘ – the obligatory unpleasant stuff.
The spasms then started again at about 3pm. It’s is 10,45 and they are continuing to dominate my world and break my spirit.
I thought that the antibiotics might have stopped them but really they have made no difference at all.
It’s probably been no worse than lots of other recent ( last 7 months ) days really, but I’m worn down psychologically.
Tomorrow I go back to Stoke Mandeville for tests. I don’t have much faith that there’ll be any quick fix to this situation.