January 13th 2018

Thanks to Toby and Cress for organising last night’s gig – a Bowie tribute. I went in the charged iBot but it always seems to ‘ misbehave ‘ now, and often takes 10 or more complex attempts to turn it on, and get it to rise up. That obliges me to not turn it off when I’m out, to save the battery, but of course at the same time it being always on does drain the battery….

My days are complicated by the never ending complexity of my bowel / Stoma care – I STILL appear to eat like a mouse yet shit like an elephant. What’s that all about?

The iBot charger help is pouring in, and I hope the clever guys and lady helping is going to end result in success, obviously! But we’ll see.

I see one of my daughters from time to time, which is of course so good for me. I’m sleeping now in the non hospital bed, having had it raised up, which seems to have resulted in a fair bit more sleep. I get less spasms now, but they do strike without particular cause, for example last night at the gig, when they were unpleasantly unrelenting for 3 hours. I am better at ( trying to ) ignore them though.

I have a different Carer starting soon, one who is handy with a spanner and is technically adept – that to me is a paramount requirement, I’ve realised, as breakages are disastrous and emotionally unhinging too.

Finally, I’ve decided to draw a line under ‘ ex friends ‘ who don’t seem able to cope with Russ in a wheelchair, so exclude him from stuff. As I have actually much closer and better friends now than before my accident,  overall I’m better off, aren’t I ? I could detail some quite awful treatment I’ve had, but instead will ‘ let it and those people go ‘. I imagine that they know who they are, but don’t read this diary anyway.

Russ 🙂

2 thoughts on “January 13th 2018

  1. Wow, that’s a big move – going back into a ‘proper’ bed – that should be so much more comfortable for you. Congratulations.

    I wonder if you would benefit from some nutritionist input? I’m currently fascinated by whether or not supplements have any effect on eg energy levels, joint mobility, recovery from colds etc. I’ve been reading about magnesium, and its possible effectiveness on pain. I wonder if that might be useful for spasms? I’m sure some of your friends who read this blog will be more knowledgeable on this point than I am.

    As for the friends – well, now you know that you are surrounded by all the best people, don’t you? 🙂 If people can’t cope with your wheeliverse, their loss.

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