New knowledge.

I know that there is a fair bit of uncertainty about my new found positivity.

It’s very understandable, given my obvious depression, particularly over the last 9 months, to be guarded about my optimism.
Quite a few of my mates that have visited, have looked very concerned as they’ve come into my room, here in hospital. The irony of me having to cheer them up rather than the other way around, has been a fair bit of fun.

So yes, it’s actually true that I’m cheerful and very, very optimistic – and yes, even about having a colostomy bag.

Right, so now for the latest complication/ solution.

I had a visit from the Consultant Rehabilitation doctor from another spinal unit.
He was very concerned about me, physically, after hearing about my 3 year history.
He’d come without having seen any of my medical history at all, which at first I judged to be on the side of unprofessional…
As he asked me detailed questions, about EVERYTHING, including lots of things that, despite my medical background, I thought irrelevant, I realised that this guy knew far, far more than anyone else I’d met, about spinal cord injury, its effects, its far reaching consequences, but more significantly the massive strides in available therapies that are there.
He gave me a thorough examination, explained all kinds of things that I’d been confused about, including what classification of paralysis I am ( break – wise T10, but function-wise T6/7 ) and the reason for the difference ( that you can snap at a certain place in your spine, but the wire ( the spinal cord ) can be stretched/ damaged maybe 8 cm above the break in the bones, making you paralysed above how it would appear from your X-rays.

He said that the tone and muscle tension ( the spasms in my legs ) were almost at a pathological level, whereby my legs were almost at the point of becoming permanently completely stiff, like wood

He recommended that I go on the maximum dose of a new and different drug, to immediately start the relaxation process of the muscles, making my life immediately easier.
He said that it would take up to 3 months of daily physical rehab to get my to a place acceptable to him, requiring admission to another specialist centre.
He talked about cheap and effective things that I can do to reduce my spasms – seriously, stuff that you really wouldn’t have thought of!
I’m not the embarrassable type, but I was very surprised !

How does 3 months further internment sound?

Frankly, bloody brilliant.

I know I’ll get lots of visitors, and I’ll come out (finally) without so many daily hurdles.

Thank you to Dani, JD, Dickon and Catrin for visiting.


PS running low on red wine; my visitors keep drinking it..

3 thoughts on “New knowledge.

  1. This is bloody marvellous news. How exciting & surprising & motivating for you. And how clever of him to come to see you unburdened of other’s opinions, free to simply meet you & assess you in real time.
    I’m so pleased to hear you’ll have a truly managed rehab, rather than being sent home if you can just about manage on your own. This may be one of the luckiest meetings of your life, & I’m so happy for you (& your family).
    See you soon, can’t wait to hear the details ? ❤️❤️❤️❤️❤️❤️❤️

  2. Great to see you today buddy. Glad to see you in the best form I can recall over 3+ years. Amazing what you have come through since we used to visit in London Bridge Hospital in August 2013. I know staying positive isn’t guaranteed, but give it your best shot as it suits you much better! You are an inspiration to many. Jx

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